Welcome! Please Introduce Yourself.
Welcome to our community! We’d love to learn a little about what has brought you here.
I'm Joff Meyer, and I have skin cancer at Stage 4. I also have neuropathy in my feet and lymphedema in my left forearm. The lymphedema followed surgical removal of lymph nodes in my left arm pit. My original disability is asthma and COPD, but my lungs have improved. I have been studying good food to eat versus cancer.
Hi Joff, welcome to the community. I am so sorry you are on this journey, but I'm glad you are here. Nutritious foods are so useful when you are navigating treatment and its impacts of the body. You might be interested in this article I found on our sister site, SkinCancer.net, about foods containing antioxidants that can help with skin cancer prevention. All the best, Kathy (Team member)
Hi
! I'm excited for this community! Hello everyone! I'm Liz. I've been involved with various HU sites on various capacities for about 10 years. I'm a bladder cancer survivor who also does advocacy for AYA cancer (Adolescent & Young Adult) and ostomies as well as other health issues. I was diagnosed in August 2016 and have a urostomy as a result of my treatment along with some chronic health issues.
Always great to connect with those who get it.
Bonus for the post...a selfie including Sam from the HealtheVoices conference last November! 😉
That sounds exciting! If you are going to get into advocacy work in a major way, you may be interested in checking our the free Patient Leader Certification program created by Health Union (the parent organization for cancer-community.com and the Society of Participatory Medicine It was designed to give patient leaders like you the tools they need to sharpen your message, extend your reach, avoid pitfalls, own your voice, discover your path, and more. It's a series of interactive online classes. You might want to check it out. All the best, Kathy (Team member) thanks I’ve already done that and have both in my linktree. I’ve been involved with HU for 8-9 years now and have extensive articles still on BladderCancer.net.
Hi. I found out I had stage 3 combined lung cancer in Jan (2026) Combined- squamous and small cell. It hadn't spread beyond the lung but unfortunately it has made it to the lymph nodes there.
I finished radation the beginning of March and will have the last cycle of chemo for now, April 1. Then the testing begins. Wish me luck! I have been blessed with minimal side effects however I have lost my hair.Hello. I have discovered the sister community as well! I have since rang the bell! 👏 I had a CT and my follow up appt with the oncologist is thurs (23rd). 🤞Unfortunately I did have to make an ER visit, I had a strange pain in my chest amd breathing was even strange, niether of which I'd consider 'normal' for the now. I was admitted for a couple of days. They determined after running some test, heart test, that it all is treatment related. Ok. 🤷♀️ We are glad to have you in both communities! Good luck with your follow-up appointment. Warmly, Kathy (team member)
Robert, you are the first person ever I have found that has been diagnosed with tongue cancer! I was diagnosed in 2017, had a glossectomy in 2017. It cam back in 2018. Had another glossectomy. I had 6 weeks of radiation. My tongue is tethered to the floor of my mouth, so I had a free flap surgery to basically correct that. It was a painful, horrible surgery, I had an infection in the surgery, they had to go in & fix that. I was in the hospital for 16 days. After that I was on a feeding tube for 6 weeks & the surgery left my mouth permanently twisted. because they had to cut the nerves below my chin. So, if anyone suggest it do not do it! It only worked for a very short time. Like you, I've learned most head & neck cancer are from HPV. Nothing to be ashamed about. It is what it is. Are you able to eat okay & did you have radiation or chemo. Also, it has changed my speech. How about you. Nice to meet another "Tongue person"
Sissy from S. C.kathy, I'm actually doing great with the exception of dental problems. My teeth weren't great to begin with, but after the radiation, they really started getting worse. I have lost a lot of teeth. Radiation on your head/neck area really destroys the tissue & makes the bones very fragile. I also had esophageal cancer in 2002, had an esophagectomy. In 2016, I had a heart attack & dbl. bypass. It all sounds so bad, but I have been very blessed in many ways. I have wonderful doctors who look after me & think I have my mother's genes of perseverance & strength. I try to have a positive attitude & also one of hope. My faith gets me through the tough times.
Thanks for asking.Your attitude is amazing. Thank you for contributing to our cancer-community.com. Your experience is so valuable to many in the community. All the best, Kathy (Team member)
