Welcome! Please Introduce Yourself.
Welcome to our community! We’d love to learn a little about what has brought you here.
In October 2022, I was diagnosed with Multiple Myeloma. It was an extremely rough journey the first 6 months, as the Revlimid and Velcade gave me diarrhea so bad that I lost 60+ pounds and my weight got down to 93 pounds. It took about a year to get my weight up to 110 pounds. (as I stopped the Revlimid in July 2023 and started taking Darzalex FasPro. I was not a good candidate for the Stem Cell Transplant as I was over 70 years old and very frail. Thanking God that the Darzalex has been keeping me in remission for almost 3 years. I had my annual PET scan this past month, and there wasn't any sign of the Multiple Myeloma, although something showed up in my cervix area. I had a biopsy and ultrasound done, and found out yesterday that I have High-grade endometrial carcinoma. I was not prepared for this news. I'm hoping to seer the surgeon next week to schedule the surgery. I don't know what to expect, as I'm hoping to hear from other women who have had uterine cancer.
I am so sorry you are experiencing this. Experiencing two cancers and their treatment at the same time is difficult. I'd like to share our section on endometrial cancer with you. It may give you some insights before your appointment with the surgeon. If you are still searching for information on multiple myeloma, our sister site Blood-Cancer.com, Yolanda, one of our health leaders who has been living with multiple myeloma for over a decade, has written some thought-provoking articles. Please let us know how it goes at the surgeon's. Warmly, Kathy (Team member) Yes, I'm already signed up with the MM support group, and Yolanda has been a great support, as I've had MM since October 2022 (and in "remission" for 3 years). MM didn't even show up in my latest PET scan, but something else did and we found out it was the high-grade endometrial carcinoma. I'm praying that I will get a call this week to schedule an appointment for the surgery. God has definitely been carrying me these past 4 years on this rough journey with MM, and HE'S NOT going to drop me now.
I am a prostate cancer survivor going on 13+ years, I was diagnosed December 2012 with Gleason score of 7. I had discovered my cancer thru my PSA testing, which showed it had gone way up in less than 6 months. I had a 12 core biopsy done which showed I had cancer in both lobes of my prostate. I had to receive additional tests to determine if my cancer had spread beyond my prostate. this require a blood test, bone scans, x-rays and MRI. It was determined that my cancer had not spread and that my best option at the time was complete removal of my prostate. I had robotic surgery performed and the recovery was about 2 weeks. The only thing I did not like was that it left me with erectile disfunction to this day. But I'm very great full that I'm cancer free. I have to say if I had not done my PSA testing, I would have cancer!
Stephen BonelliThank you, I did find the information I needed
I will use the new prostatecancer.net for more information.Stephen Bonelli
I as diagnosed with non small cancer in my left lung. It was pretty hard to take as my mother died of lung cancer years ago. I am getting ready to have pet scan. Then I will meet my cancer team. My wife and kids are very supportive. My wife researched ever thing I could eat that will help. They are great. This cancer is inoperable because of it location. My doctor said we caught it early as it wasn’t there 6 months ago,
My name Dave and I am 65 years oldThank you for sharing your story. We are glad you are here with us. As I'm sure you know from your experience with your mother, cancer impacts the whole family. It sounds like your family is right there with you. We're thinking of you as you prepare for your PET scan. Scans can be surprisingly anxiety-inducing, so here's an article about managing scanxiety, in case you need it. Warmly, Kathy (Team member)
Good morning everyone My name is Kelly and I'm glad you are have been very lonely for a long time. I was initially diagnosed with squamous cell carcinopa three times and was dealing with that on and off and then I was diagnosed with breast cancer I also had a skin graft done on one of my skin cancers because I had to wait to get it taken care of because I had to take care of the breast cancer first I had surgery olympectomy in September and then radiation up until January they took two nodes out so now I have lymphedema and being tested for a reoccurrence I'm very scared very mad and I'm very much alone so here I say with my little dog I companion I have a husband who is very good but he's a little bit older than me 75 and he struggles with his health he tries to do the best that he can I do have two children two girls with their own families that don't live close to me I don't talk to them much about what's going on because they're in the midst of raising children and I don't want to be a burden well thank you so much for being here I hope everyone gets better
Welcome to the community, Kelly. Thank you for sharing your experience. Living with cancer can truly be a lonely time, so I'm glad you are here. Our community's goal is to connect those living with cancer to share experiences. You mention upcoming tests. Your feelings about them are normal. You aren't alone. One of our health leaders wrote about "scanxiety," the feeling of apprehension that he faces when it's time for scans and further testing. Please remember that having a good support system is very helpful. If your family can't be there day-to-day, your medical team may be able to find you support and connect you with a person or group who can give you a hand when needed. Warmly, Kathy (Team member)
